I finally got all the testing done, received my results and talked with my doctor. He said according to the MRI, there are signs of migraines but he doesn’t know what caused the blindness. I told him he was right about his diagnosis but there are two types of ocular migraines and the retinal one can cause blindness for up to an hour. He did not know that, or if he did in the past, he had forgotten. I am so happy it’s not MS! My Uncle Ralph had multiple sclerosis and was in a wheelchair before he died. Another late uncle of mine had amyotrophic lateral sclerosis (Lou Gehrig’s Disease) and my grandmother had Parkinson’s. Central nervous system disorders are a genetic possibility and greatly worry me. My fibromyalgia is considered a central nervous system disorder.
As for the hyperreflexia, he did not address that issue. I was so happy about the lack of brain lesions, I forgot to ask. I suppose it’s possible it was an after-effect of my cat trying to kill me with the freezer door. It was most likely a concussion. I’ve had at least 3 now and only went to the hospital for one. It occurred to me that I tend to avoid the emergency room unless I think I am actually dying or if I need stitches because an injury won’t stop bleeding. I guess I should reconsider that stance!
My murderous Simon, looking all innocent.
Part 2 of my last post, Friday Afternoon
Letter to my sister:
“My doctor scolded me for not going to the hospital. He said if it happens again, go to the hospital immediately. He ordered an MRI for my brain and neck, and a MRA for both my head and my neck. He wants me to go asap but I don’t know if my insurance will allow it. I may have to wait until January. I have no sinus infection, so no antibiotics. My ears and throat are fine. It looks like it is MS or a blood clot that may have blocked the blood causing my eye to go half blind for 5 minutes or so. He had me stand on one foot, raise my hands, walk in a straight line, close my eyes and he touched my fingertips to see if I could feel the right one-
He shone the light in my eyes and waved it around in a big circle to see if I could see left and right with my head still. It all seems fine now, no sign of a stroke. He said people don’t lose eyesight temporarily from a sinus infection. Sooooooo, now I wait for testing.”
My doctor asked in a round-about way if I had my neck “adjusted” (by a chiropractor) or had some kind of neck injury. I said no at the time and then later that night, I remembered and had to send him an email the next morning…
” I’ve had time to think and yes, 8-10 days ago, I may have jerked my head back hard. I was bent over, digging around in our chest freezer when my 10 lb cat decided to jump for the top edge of the open freezer door. It crashed down on the top/back of my skull (left side) and I jumped up and backward. I remember the door hitting my left shoulder as I went back, before it slammed shut. My vision dimmed for a few seconds but it did not knock me out. I walked upstairs okay and put an ice-pack on my head. Any headache or neck pain resulting from the injury would have been ignored because I always have headaches and neckaches. A day or two later, I noticed a small scab on my scalp so it drew just a tiny bit of blood. Sorry, I didn’t remember this when we spoke. Shawna “
His reply was “Get the MRI and MRA tests done as ordered.”
Hubby is annoyed that we will have to go to battle with the insurance company and pay the deductible plus 20%, if we can get them to approve 3 procedures ordered by a doctor who is out of network. Plus, there is the added sting of starting a new deductible with a new company next month.
The moral to the story is YES, MY CAT IS TRYING TO KILL ME.
My body has always thought it’s a wonderful trick to play- get a new, weird symptom on a Friday afternoon when the doctor’s office is about to close for the weekend. I have to determine quickly, is this going to kill me or can it wait until Monday?
Yesterday was a doozy. I was writing out holiday cards at the time and was having trouble focusing well enough to write the names and addresses. It was early afternoon and almost time for my afternoon nap when I suddenly got two hard muscle spasms in my cheek and the area on the right side of my mouth went tingly, then numb. The tingly lip thing had been happening on and off for about a week prior. I assumed it was just fibromyalgia messing with me again, although the face spasm was a new twist. Then I realized my vision was darker and I got scared. I ran to the bathroom to find my right pupil was large and my left one was small. I could still grin and my eyelids were not drooping or anything so it wasn’t Bells Palsy or a stroke. I covered one eye and then the other. My left eye with the small pupil was reacting to light and seeing the room well lit and bright. My right eye pupil was large, not really reacting, and the room seemed quite a bit darker, with a blue or gray haze over it.
I did some quick googling and there are like 74 reasons your pupils could be a different size. But with the particular symptoms I have, it kept coming back to Multiple Sclerosis. Don’t you just love the symptom checker on WebMD? LOL Ten years ago, when I was first diagnosed with Fibromyalgia, I questioned if it could actually be MS. My Uncle Ralph had MS so it is in my family. The specialist assured me I had Fibro because of the tender point test when I almost accidently punched him. Fight or Flight!
In the past year, I’ve developed ME/CFS supposedly- extreme exhaustion and fatigue, made worse by activity. I’m also experiencing swollen glands and sore throats more often than normal along with headaches, weakness, and trouble walking. Wait, most of those are also symptoms of MS. Though swollen glands and sore throat are not as far as I can tell.
Anyway, I woke up this morning and checked my eyes again. The right pupil is still bigger. My vision is still a little bit off. I have a headache and my eye hurts. And I am still anxious, angry, and almost resigned to the fact that life sucks and it isn’t going to get better…. Unless the Electoral College Electors put Hillary in office!!